World Federation of Hemophilia

1425, boul. René-Lévesque Ouest, Bureau 1200
Montréal, QC H3G 1T7
CEO: Alain Baumann
Board President: Cesar Garrido

Charitable Reg. #:10822 2050 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 5/5]

✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

A-

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

93%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 93 cents are available for programs.



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OVERVIEW

About World Federation of Hemophilia:

World Federation of Hemophilia is a 5-star rated charity with a high results reporting grade. The charity is financially transparent and has low overhead costs.

Founded in 1963, World Federation of Hemophilia (WFH) is an international health charity that works to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. WFH partners with healthcare providers, governments, and national member organizations in 147 countries. The charity provides healthcare providers with the tools to identify, support, and treat people living with bleeding disorders. The charity also operates various education and advocacy initiatives to raise awareness and improve access to treatment and care. WFH reports that Hemophilia affects approximately 1,125,000 men worldwide. However, WFH estimates that over 75% expected people living with hemophilia worldwide have not been identified and diagnosed.  

A Charity Intelligence 2023 Top 100 Rated Charity

WFH's Humanitarian Aid program made up 46% of program spending in F2021. The charity works to improve the lack of access to care and treatment by supporting national member organizations, healthcare practitioners, and hemophilia treatment centres. WFH reports that it performed 838 surgeries and managed 51,400 bleeding episodes in F2021. The charity reports that over 22,000 patients accessed treatment through the WFH Humanitarian Aid program.

The charity's Healthcare Development programs made up 32% of total program spending in F2021. WFH monitors product safety, supply, and access; issues advisories related to treatment safety and supply; and monitors new treatments' development and regulatory status.

Education and Public Policy programs accounted for the remaining 22% of program spending. WFH provides national, regional, and global training programs and initiatives. Current training focuses on identifying and treating bleeding disorders and data collection. The charity operates an educational platform called WFH eLearning. The platform features over 900 educational resources, including educational videos, webinar recordings, interactive learning modules, and online tools. Official WFH translations are available in seven different languages. World Federation of Hemophilia held 41 workshops with 1,468 attendees in F2021. 

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Results and Impact

WFH reports that 2,800 individuals received prophylactic treatment, 2,011 through factor replacement therapy and 825 through non-factor replacement therapy. Additionally, the charity reports that it conducted 838 surgeries, and 83 life and limb-saving surgeries in F2021. World Federation of Hemophilia treated 62,549 acute bleeds and provided 169,458 infusions related to acute bleed treatment.

While Ci highlights these key results, they may not be a complete representation of World Federation of Hemophilia's results and impact.

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Finances

At the time of this update, World Federation of Hemophilia has not posted its audited financial statements for F2021. The most recent publicly available financial statements are from F2020.

World Federation of Hemophilia received $10.3m in cash donations and $200.5m in donated goods (mainly medical treatment supplies) in F2021. Administrative costs are 1% of revenues (less investment income), and fundraising costs are 7% of cash donations. This results in total overhead spending of 8%. For every dollar donated, 93 cents go to the cause. This is within Ci’s reasonable range for overhead spending.

WFH has funding reserves of $20.8m. Its funding reserves can cover 2.2 years of annual program costs.

World Federation of Hemophilia also works with WFH USA to administer specific joint programs. In F2021, WFH USA granted $4.2m to World Federation of Hemophilia for its joint programs. WFH USA also paid WFH $256k in employee salary reimbursements.

The charity's World Congress that was scheduled to take place in June 2020 was cancelled as a result of the covid-19 pandemic. An insurance claim of $1.5m was filed in April 2020 and $250k in December 2021 to cover the net loss resulting from the cancellation of this event.

Charity Intelligence has sent this update to World Federation of Hemophilia for review. Changes and edits may be forthcoming.

Updated on August 8, 2022 by Ann Lei.

Financial Review


Financial Ratios

Fiscal year ending December
202120202019
Administrative costs as % of revenues 1.1%2.6%1.3%
Fundraising costs as % of donations 6.5%8.1%9.1%
Total overhead spending 7.5%10.7%10.4%
Program cost coverage (%) 221.8%206.4%170.8%

Summary Financial Statements

All figures in $000s
202120202019
Donations 10,2668,9068,899
International donations 256262243
Goods in kind 200,48659,910143,565
Government funding 1,4321,0210
Fees for service 479297872
Business activities (net) (853)619(859)
Investment income 520811752
Other income 3061,5440
Total revenues 212,89373,370153,473
Program costs 9,3637,3599,208
Donated goods exp 200,48659,910143,565
Administrative costs 2,2321,8611,969
Fundraising costs 662723812
Other costs (12)5842
Total spending 212,73269,911155,596
Cash flow from operations 1613,460(2,123)
Capital spending 1757111
Funding reserves 20,76415,19115,728

Note: Ci backed out amortization of capital assets  from program, administrative, and fundraising costs on a pro-rata basis. Ci included 'Canada Emergency Wage Subsidy and other subsidies' income reported below the line in government funding. Ci reported revenue generated from 'Congresses and virtual summit' as business activities, and reported it net of expenses affecting revenue by ($853k) in F2021, $619k in F2020, and ($859k) in F2019. Ci reported the Congress cancellation insurance claim as other revenue affecting revenue by $306k in F2021, $1.5m in F2020, and $nil in F2019.

Salary Information

Full-time staff: 54

Avg. compensation: $75,044

Top 10 staff salary range:

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
1
$160k - $200k
0
$120k - $160k
3
$80k - $120k
6
$40k - $80k
0
< $40k
0

Information from most recent CRA Charities Directorate filings for F2021

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Comments & Contact

Comments added by the Charity:

No comments have been added by the charity.

Charity Contact

Website: www.wfh.org
This email address is being protected from spambots. You need JavaScript enabled to view it.

Tel: 514-875-7944



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Charitable Registration Number: 80340 7956 RR0001