Founded in 1963, World Federation of Hemophilia (WFH) is an international charity that works to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. WFH trains experts in the field to diagnose and manage patients, advocates for safe treatment products, and educates and empowers people with bleeding disorders. WFH reports that an estimated 1 in 1,000 people worldwide live with a bleeding disorder. However, approximately 75% of them receive inadequate care or no treatment at all, and often their disorders remain undiagnosed.

World Federation of Hemophilia’s Healthcare Development Programs made up 56% of total program spending in F2017. WFH reports that these programs and activities reached a total of 121 countries worldwide in F2018 – 56 were under the Global Program Activities category, and 65 were under the Global Alliance Program, Country Programs, and Cornerstone Initiative Country categories. These programs and activities are part of the WFH Continuum of Development, which aims to achieve sustainable and comprehensive care and treatment for all. They work together to increase the diagnosis and treatment of people with hemophilia and other bleeding disorders in the world’s poorest countries.

Through the Global Alliance program, WFH diagnosed 1,260 people with hemophilia, 258 with von Willebrand disease, and 257 with rare clotting factor deficiencies in F2017. Additionally, WFH trained over 3,410 healthcare professionals with enhanced medical and paramedical knowledge, and over 2,317 patients and family members on bleeding disorders.

Humanitarian Aid programs made up 23% of World Federation of Hemophilia’s total program spending in F2017. This program increases access to care and treatment for bleeding disorders in developing countries. WFH reports that it treated 16,189 people in 60 countries with over 160 million IUs in F2017.

World Federation of Hemophilia’s Education and Public Policy program made up 21% of total program spending in F2017. WFH delivered approximately 1,072,155 educational resources as downloads, online resources, and print distribution to individual learners in F2017. It also produced three videos of expert panelists discussing five successful von Willebrand disease outreach programs.

World Federation of Hemophilia is a ­­­­large charity, with total donations of $7.9m in F2017. WFH received significant product donations in kind of $54.6m in F2017. Administrative costs are 2% of revenues (excluding investment income) and fundraising costs are 19% of cash donations. For every dollar donated, 79 cents go to the cause. This is within Ci’s reasonable range for overhead spending. Funding reserves of $13.8m can cover three months of annual program costs (excluding the cost of donated goods).

­­This charity report is an update that has been sent to World Federation of Hemophilia for review. Changes and edits may be forthcoming.

Updated on July 30, 2019 by Lauren Chin.