World Federation of Hemophilia

1425, boul. René-Lévesque Ouest, Bureau 1200
Montréal, QC H3G 1T7
CEO: Alain Baumann
Board President: Alain Weill

Charitable Reg. #:10822 2050 RR0001


Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 5/5]



Audited financial statements for current and previous years available on the charity’s website.



Grade based on the charity's public reporting of the work it does and the results it achieves.



The demonstrated impact per dollar Ci calculates from available program information.


Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.



For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 79 cents are available for programs.

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About World Federation of Hemophilia:

Founded in 1963, World Federation of Hemophilia (WFH) is an international charity that works to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. WFH trains experts in the field to diagnose and manage patients, advocates for safe treatment products, and educates and empowers people with bleeding disorders. WFH reports that an estimated 1 in 1,000 people worldwide live with a bleeding disorder. However, approximately 75% of them receive inadequate care or no treatment at all, and often their disorders remain undiagnosed.

World Federation of Hemophilia’s Healthcare Development Programs made up 56% of total program spending in F2017. WFH reports that these programs and activities reached a total of 121 countries worldwide in F2018 – 56 were under the Global Program Activities category, and 65 were under the Global Alliance Program, Country Programs, and Cornerstone Initiative Country categories. These programs and activities are part of the WFH Continuum of Development, which aims to achieve sustainable and comprehensive care and treatment for all. They work together to increase the diagnosis and treatment of people with hemophilia and other bleeding disorders in the world’s poorest countries.

Through the Global Alliance program, WFH diagnosed 1,260 people with hemophilia, 258 with von Willebrand disease, and 257 with rare clotting factor deficiencies in F2017. Additionally, WFH trained over 3,410 healthcare professionals with enhanced medical and paramedical knowledge, and over 2,317 patients and family members on bleeding disorders.

Humanitarian Aid programs made up 23% of World Federation of Hemophilia’s total program spending in F2017. This program increases access to care and treatment for bleeding disorders in developing countries. WFH reports that it treated 16,189 people in 60 countries with over 160 million IUs in F2017.

World Federation of Hemophilia’s Education and Public Policy program made up 21% of total program spending in F2017. WFH delivered approximately 1,072,155 educational resources as downloads, online resources, and print distribution to individual learners in F2017. It also produced three videos of expert panelists discussing five successful von Willebrand disease outreach programs.

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World Federation of Hemophilia is a ­­­­large charity, with total donations of $7.9m in F2017. WFH received significant product donations in kind of $54.6m in F2017. Administrative costs are 2% of revenues (excluding investment income) and fundraising costs are 19% of cash donations. For every dollar donated, 79 cents go to the cause. This is within Ci’s reasonable range for overhead spending. Funding reserves of $13.8m can cover three months of annual program costs (excluding the cost of donated goods).

­­This charity report is an update that has been sent to World Federation of Hemophilia for review. Changes and edits may be forthcoming.

Updated on July 30, 2019 by Lauren Chin.

Financial Review

Financial Ratios

Fiscal year ending December
Administrative costs as % of revenues 2.0%6.5%6.7%
Fundraising costs as % of donations 18.9%18.3%15.9%
Total overhead spending 20.9%24.9%22.6%
Program cost coverage (%) 22.5%82.1%89.7%

Summary Financial Statements

All figures in $000s
Donations 7,9216,8726,451
Goods in kind 54,57411,3049,258
Government funding 5011
Fees for service 812400735
Investment income 223210195
Other income 132712
Total revenues 63,54818,81216,662
Program costs 61,47516,92813,688
Administrative costs 1,2761,2171,107
Fundraising costs 1,5001,2601,026
Other costs 140140(155)
Total spending 64,39119,54515,665
Cash flow from operations (842)(733)998
Capital spending 812570
Funding reserves 13,80613,89912,281

Note: Ci has adjusted for amortization of capital assets on a pro-rata basis, affecting total expenses by ($43k) in F2017, ($48k) in F2016, and ($38k) in F2015.

Salary Information

Full-time staff: 46

Avg. compensation: $70,971

Top 10 staff salary range:

$350k +
$300k - $350k
$250k - $300k
$200k - $250k
$160k - $200k
$120k - $160k
$80k - $120k
$40k - $80k
< $40k

Information from most recent CRA Charities Directorate filings for F2017

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Charitable Registration Number: 80340 7956 RR0001