World Federation of Hemophilia is a 5-star rated charity with a high results reporting grade. The charity is financially transparent and has low overhead costs.

Founded in 1963, World Federation of Hemophilia (WFH) is an international health charity that works to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. WFH partners with healthcare providers, governments, and national member organizations in 147 countries. The charity provides healthcare providers with the tools to identify, support, and treat people living with bleeding disorders. The charity also operates various education and advocacy initiatives to raise awareness and improve access to treatment and care. WFH reports that Hemophilia affects approximately 1,125,000 men worldwide. However, WFH estimates that over 75% expected people living with hemophilia worldwide have not been identified and diagnosed.  

WFH's Humanitarian Aid program made up 46% of program spending in F2021. The charity works to improve the lack of access to care and treatment by supporting national member organizations, healthcare practitioners, and hemophilia treatment centres. WFH reports that it performed 838 surgeries and managed 51,400 bleeding episodes in F2021. The charity reports that over 22,000 patients accessed treatment through the WFH Humanitarian Aid program.

The charity's Healthcare Development programs made up 32% of total program spending in F2021. WFH monitors product safety, supply, and access; issues advisories related to treatment safety and supply; and monitors new treatments' development and regulatory status.

Education and Public Policy programs accounted for the remaining 22% of program spending. WFH provides national, regional, and global training programs and initiatives. Current training focuses on identifying and treating bleeding disorders and data collection. The charity operates an educational platform called WFH eLearning. The platform features over 900 educational resources, including educational videos, webinar recordings, interactive learning modules, and online tools. Official WFH translations are available in seven different languages. World Federation of Hemophilia held 41 workshops with 1,468 attendees in F2021. 

At the time of this update, World Federation of Hemophilia has not posted its audited financial statements for F2021. The most recent publicly available financial statements are from F2020.

World Federation of Hemophilia received $10.3m in cash donations and $200.5m in donated goods (mainly medical treatment supplies) in F2021. Administrative costs are 1% of revenues (less investment income), and fundraising costs are 7% of cash donations. This results in total overhead spending of 8%. For every dollar donated, 93 cents go to the cause. This is within Ci’s reasonable range for overhead spending.

WFH has funding reserves of $20.8m. Its funding reserves can cover 2.2 years of annual program costs.

World Federation of Hemophilia also works with WFH USA to administer specific joint programs. In F2021, WFH USA granted $4.2m to World Federation of Hemophilia for its joint programs. WFH USA also paid WFH $256k in employee salary reimbursements.

The charity's World Congress that was scheduled to take place in June 2020 was cancelled as a result of the covid-19 pandemic. An insurance claim of $1.5m was filed in April 2020 and $250k in December 2021 to cover the net loss resulting from the cancellation of this event.

Charity Intelligence has sent this update to World Federation of Hemophilia for review. Changes and edits may be forthcoming.

Updated on August 8, 2022 by Ann Lei.

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