Cystic Fibrosis Canada

2323 Yonge Street, Suite 800
Toronto, ON M4P 2C9
President & CEO: Kelly Grover
Board Chair: Leona Pinsky

Charitable Reg. #:10684 5100 RR0001


Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 3/5]



Audited financial statements for current and previous years available on the charity’s website.



Grade based on the charity's public reporting of the work it does and the results it achieves.



The demonstrated impact per dollar Ci calculates from available program information.


Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.



For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 52 cents are available for programs.

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About Cystic Fibrosis Canada:

Cystic Fibrosis Canada is a three-star charity. It has an A- results reporting grade, which is above average. For every dollar donated to the charity, 52 cents are available to go to the cause, which is outside Ci's reasonable range

Founded in 1960, Cystic Fibrosis Canada (CFC) aims to end cystic fibrosis by funding research for a cure and advocating for high-quality patient care. Cystic fibrosis (CF) is an inherited disease that can cause severe damage to the lungs, digestive tract, and other organs. It involves uncontrolled mucus buildup in the body, which can lead to nutrient deficiencies, chronic infections, and death in most patients. Cystic Fibrosis Canada states that CF is the most common fatal genetic disease affecting Canadian children and young adults. It currently estimates that more than 4,332 Canadians live with CF. CFC’s main office is in Toronto.

Cystic Fibrosis Canada runs four main programs: Research, Healthcare, Education, and Advocacy. The charity spent $6.9 million on its programs and grants in F2023.

Research represented 46% of program spending in F2023. CFC’s research funding has resulted in many significant developments in CF research, including the discovery of the CF gene in 1989. The charity funded ten new research projects in F2023. CFC researched the impact of covid-19 on individuals with cystic fibrosis. 215 patients enrolled in 23 interventional clinical trials and 469 patients enrolled in three observational clinical trials.

Healthcare represented 27% of program costs in F2023. CFC funds a network of 42 CF clinics across Canada. The charity also runs a Healthcare Advisory Council that meets three times a year to provide guidance on issues that affect these clinics. In F2022 the charity brought together over 150 clinic staff to educate on best care practices.

Education programs were 16% of program costs in F2023. CFC maintains the Canadian Cystic Fibrosis Registry, a collection of national CF patient data to measure trends in CF and improve understanding of CF among medical professionals. The charity provided grants to 40 sites to promote continuous education for staff.

Advocacy represented 10% of program costs in F2023. Cystic Fibrosis Canada runs provincial and national advocacy campaigns to raise awareness and increase support for CF patients. In F2023, the charity advocated for Trikafta, a life-saving cystic fibrosis medication, to be available for all Canadians aged six and above.

The remaining 1% of program spending was allocated to other costs.

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Results and Impact

Cystic Fibrosis Canada advocates for provincial and federal governments to increase access to CF treatments. Following the charity’s advocacy efforts, every province and territory funds Trikafta for Canadians aged six and older.  

In F2022, CFC funded five peer-reviewed research articles on cystic fibrosis. The charity’s research on the impacts of covid-19 on patients with CF found that 15% of patients require hospitalization and 3% die.

While Ci highlights these key results, they may not be a complete representation of Cystic Fibrosis Canada’s results and impact.

This charity is not yet rated on impact (n/r)

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Cystic Fibrosis Canada received $12.7m in donations in F2023. Administrative costs are 11% of revenue (excluding investment income), and fundraising costs are 36% of donations. This results in total overhead spending of 48%. For every dollar donated to the charity, 52 cents are available to go to the cause. This is outside Ci’s reasonable range.

The charity has $13.9m in reserve funds, which can cover 202%, or two years of its annual program costs.

This charity report is an update that has been sent to Cystic Fibrosis Canada for review. Changes and edits may be forthcoming. 

Updated on August 10, 2023 by Liam Chapleau.

Financial Review

Financial Ratios

Fiscal year ending January
Administrative costs as % of revenues 11.4%9.4%11.7%
Fundraising costs as % of donations 36.4%36.0%35.4%
Total overhead spending 47.8%45.4%47.0%
Program cost coverage (%) 201.7%217.3%221.6%

Summary Financial Statements

All figures in $000s
Donations 12,71911,19210,376
Government funding 06941,463
Business activities (net) 274335439
Investment income (64)(112)184
Other income 6391,058540
Total revenues 13,56813,16713,002
Program costs 4,5684,6014,323
Grants 2,3141,623418
Administrative costs 1,5531,2491,499
Fundraising costs 4,6344,0293,668
Total spending 13,06911,5029,908
Cash flow from operations 4991,6653,094
Capital spending 000
Funding reserves 13,87913,52610,505

Note: To report on a cash basis, Ci accounted for deferred revenue, impacting revenue by ($160k) in F2023, $358k in F2022, and ($17k) in F2021. Ci included investment income within revenue in the amount of ($64k) in F2023, ($112k) in F2022, and $184k in F2021. Ci removed amortization from administrative costs in the amount of ($13k) in F2023, ($14k) in F2022, and ($14k) in F2021.

Salary Information

Full-time staff: 70

Avg. compensation: $82,445

Top 10 staff salary range:

$350k +
$300k - $350k
$250k - $300k
$200k - $250k
$160k - $200k
$120k - $160k
$80k - $120k
$40k - $80k
< $40k

Information from most recent CRA Charities Directorate filings for F2022

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Comments & Contact

Comments added by the Charity:

No comments have been added by the charity.

Charity Contact

This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 1-800-378-2233


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Charitable Registration Number: 80340 7956 RR0001