ALS Society of Canada

3000 Steeles Avenue East, Suite 200
Markham, ON L3R 4T9
CEO: Tammy Moore
Board Chair: Genevieve Bertrand

Charitable Reg. #: 10670 8977 RR0002
Sector: Health
Operating Charity

Social Results Reporting

Grade: A-

The grade is based on the charity's public reporting of the work it does and the results it achieves.

Financial Transparency

Audited financial statements for current and previous years available on the charity's website [ Audited financial statement for most recent year ]

Program Cost Coverage

Funding Reserves Program Costs

Spending Breakdown

Full-time staff #22

Avg. Compensation $85,636

Top 10 Staff Salary Range

$350k + 0
$300k - $350k 0
$250k - $300k 0
$200k - $250k 0
$160k - $200k 0
$120k - $160k 2
$80k - $120k 8
$40k - $80k 0
< $40k 0
Information from most recent CRA Charities Directorate filings for F2014

About ALS Society of Canada:

Founded in 1977, ALS Society of Canada (ALS Canada) works to improve the lives of people living with amyotrophic lateral sclerosis (ALS). People with ALS suffer from progressive degeneration of motor neurons in their nervous system, which leads to impaired muscle movement, muscle weakness, impaired speech and difficulty breathing. There is currently no cure or effective treatment for the disease, and approximately 80% of ALS patients die within 2 to 5 years of diagnosis. ALS Canada offers patient support services, funds research projects that improve treatments or look for a cure for ALS and raises public awareness about the disease.

ALS Society of Canada's flagship program is the ALS Canada Research Program, which made up 80% of program costs in F2015. The charity invested $8.1m in ALS research in F2015 to fund 34 research projects and 54 researchers across Canada. Its five largest research grants committed during the year went to the University of Alberta ($2.9m over 5 years), University Laval ($2.5m over 3 years), Universite de Montreal ($1.7m over 5 years), University of Manitoba ($1.6m over 5 years) and University of Toronto ($1.4m over 5 years).

ALS Society of Canada's Ontario Client Services program made up 7% of program costs in F2015 and served 1,041 registered clients, up 49% from the prior year. ALS Canada runs support groups and makes home visits to its registered clients with the goal that these services will help ALS patients with the emotional struggles of the disease. In F2015, ALS Canada made 1,077 home visits and ran 152 support groups across Ontario through this program.

ALS Society of Canada's Ontario Equipment program made up 7% of program costs in F2015 and helps patients with ALS afford items such as walkers, wheelchairs, stair lift systems and bathroom aid equipment. To help ALS patients, ALS Canada lends used equipment and offers funding assistance for people leasing or renting equipment. Through the Equipment program, ALS Canada responded to 1,793 requests and helped 606 people access the equipment they needed in F2015.

On an international level, ALS researchers recently made two major breakthroughs. In 2015, researchers at John Hopkins Medicine discovered clumps of a protein called TDP-43 in around 97% of ALS patients – when this protein aggregates, it cannot function properly. Unwanted proteins form in the brain, which leads to brain and spinal cord cell death. In July 2016, researchers at the University of Massachusetts discovered NEK1, one of the most common genes associated with ALS. The discovery was made through Project MinE, a gene-sequencing project funded by the American ALS Association through ALS Ice Bucket Challenge donations.

Financial Review:

ALS Society of Canada is a big-cap charity with total donations of $6.4m in F2015. F2014 donations spiked due to the success of the ALS Ice Bucket Challenge – ALS Society of Canada received $14.4m in F2014, of which the charity deferred $13.7m. Ci adjusted for deferred revenues for all three years of analysis, affecting donations by ($7.3m) in F2015, $13.7m in F2014 and $51k in F2013.

Because of high ALS Ice Bucket Challenge donations in F2014, ALS Society of Canada's granting activities increased by 589% from $1.2m in F2014 to $8.1m in F2015. ALS Canada committed to disburse $7.8m in research grants between F2016 and F2020 from its Research Fund. The charity has committed to invest $3.1m in F2016, $2.1m in F2017, $1.3m in F2018, $826k in F2019 and $578k in F2020 in ALS research.

Administrative costs are 15% of revenues and fundraising costs are 33% of donations. Combined, $0.48 of every donated dollar goes toward overhead costs, which exceeds Ci's reasonable range for overhead spending. Donations include transfers from provincial ALS societies of $861k in F2015, $948k in F2014 and $1.1m in F2013. Ci excluded these amounts when calculating the fundraising cost ratio.

ALS Society of Canada has funding reserves of $20.2m, of which $1.3m are donor-endowed. Excluding donor-endowed funds, the charity's reserves can cover annual program and granting costs for 1.7 years.

This charity report is an update that is currently being reviewed by ALS Society of Canada. Changes and edits may be forthcoming.

Updated on July 26, 2016 by Katie Khodawandi.

Financial Ratios

Fiscal year ending December
Administrative costs as % of revenues 15.0%3.5%11.8%
Fundraising costs as % of donations 32.6%13.2%30.4%
Program cost coverage (%) 184.5%522.6%166.0%

Summary Financial Statements

All figures in $000s
Donations 6,39620,8326,537
Lotteries (net) 562751
Investment income 21123173
Total revenues 6,66321,0906,661
Program costs 2,8692,6652,874
Grants 8,0581,1701,463
Administrative costs 968722777
Fundraising costs 1,8022,6201,640
Cash flow from operations (7,034)13,912(93)
Funding reserves 20,15720,0417,197
Note: Ci adjusted for deferred revenues, affecting donations by ($7.3m) in F2015, $13.7m in F2014 and $51k in F2013. To report on a cash basis, Ci did not include amortization of bond premium in revenues, decreasing investment income by $10k in F2015, $16k in F2014 and $18k in F2013. Ci reported raffle, bingo and lottery revenues net of direct expenses in lotteries, decreasing total revenues and expenses by $73k in F2015, $67k in F2014 and $64k in F2013. Ci backed amortization out of program, administrative and fundraising costs based on % of total expenses.

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