ALS Society of Canada

393 University Avenue, Suite 1701
Toronto, ON M5G 1E6
CEO: Tammy Moore
Board Chair: Josette Melanson

Charitable Reg. #:10670 8977 RR0002

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

🔓
Unlock Charity Ratings

✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

A-

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

74%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 74 cents are available for programs.



My anchor

Programs

About ALS Society of Canada:

Founded in 1977, ALS Society of Canada (ALS Canada) works to improve the lives of people living with amyotrophic lateral sclerosis (ALS) and create a future without the disease. ALS causes a progressive degeneration of motor neurons in the nervous system, which leads to impaired muscle movement, muscle weakness, impaired speech, and difficulty breathing. Currently, there is no cure for the disease and 80% of people with ALS die within 2-5 years. ALS Canada’s core programs consist of Support Services in Ontario, National Research, Public Awareness, and Advocacy.

In 2019, ALS Canada allocated 46% of program spending to Support Services in Ontario ($2.8m). The Support Services program provides equipment and support to people living with ALS. In 2019, the equipment program provided free loans of 2,800 pieces of equipment worth $1.6m to Ontarians living with the disease. ALS Canada’s regional managers performed 1,491 home visits to build personalized connections with patients and their families. The charity also held 140+ support group meetings and connected with patients and their families via phone, text message, or email 7,203 times.

In 2019, ALS Canada allocated 36% of spending to National Research ($2.2m). ALS Canada granted $1.4m to ALS researchers in Canada. This money funded ten new research projects with a focus on discovering a cure for ALS, as well as six trainee research awards with a goal of creating the next generation of Canadian ALS researchers. The charity also hosted the ALS Canada Research Forum, consisting of 2 days of scientific presentations with 200+ attendees.

ALS Canada allocated 9% of program spending to Public Awareness ($593k) in 2019. The charity’s blog shared the stories of 30 people affected by ALS for people to understand the full impact of the disease. More than 390,000 visitors went to ALS Canada’s website in 2019, with 5,600 downloads of ALS fact sheets. Finally, 120 people attended research webinars to expand their knowledge of ALS.

In 2019, ALS Canada allocated 6% of program spending to Advocacy ($386k). ALS Canada’s Advocacy program engages officials in the federal and Ontario governments to represent people living with ALS. In F2019, ALS Canada held 18 federal meetings and 11 provincial meetings with Canadian politicians to advocate for the needs of ALS patients. Currently, ALS Canada is fighting for Radicava – an ALS treatment approved nationwide in 2018 – to be made more accessible through public reimbursement. In 2019, 2,300+ Canadians sent letters to federal party leaders through ALS Canada’s website for more equitable access to ALS treatments.

ALS Canada allocated the remaining 3% of program spending to other charitable expenses.

My anchor

Results and Impact

In 2019, 320+ Ontario residents supported by ALS Canada responded to a survey on their experience with the charity. Overall, 93% of respondents reported positive impressions of working with their regional manager.

Research projects funded by ALS Canada were published in multiple journals in 2019, including the National Society of Medicine, eLife, Neuron, and Nature Communications. To highlight one example, Dr. Yana Yunosova from the Sunnybrook Research Institute and University of Toronto led a study analyzing speech for earlier detection of bulbar ALS. Study participants were asked to read specific passages and their speech patterns were analyzed by the researchers. Dr. Yunosova and her team found that they were able to detect early changes associated with bulbar ALS prior to the onset of obvious symptoms and are continuing their research.

While Ci highlights these key results, they may not be a complete representation of ALS Canada's results and impact.

My anchor

Finances

ALS Society of Canada is a Large charity with total donations of $10.1m in F2019, which is up 37% from $7.4m in F2018. Administrative costs are 4% of revenues (excluding investment income) and fundraising costs are 21% of donations. This means overhead costs are 26%. For every dollar donated to the charity, 74 cents go to the cause. This is within Ci’s reasonable range for overhead spending.

ALS Society of Canada has funding reserves of $16.5m, of which $1.3m is donor-endowed. Like many charities funding medical research, ALS Canada has multi-year funding commitments. In 2019, ALS Canada's research grant commitments totaled $5.6m, with $4.0m to be granted in 2020. Excluding ALS Canada's donor-endowed funds, the charity’s funding reserves can cover annual program costs and research grants for roughly 2.4 years.

This charity report is an update that has been sent to ALS Society of Canada for review. Comments and edits may be forthcoming.

Updated on August 26, 2020 by Eric Jose.

Financial Review


Financial Ratios

Fiscal year ending December
201920182017
Administrative costs as % of revenues 4.1%6.2%7.7%
Fundraising costs as % of donations 21.4%27.7%23.3%
Total overhead spending 25.6%33.9%31.0%
Program cost coverage (%) 244.6%243.2%261.8%

Summary Financial Statements

All figures in $000s
201920182017
Donations 10,1427,4007,529
Goods in kind 361292280
Lotteries (net) 352831
Investment income (16)193227
Total revenues 10,5227,9138,068
Program costs 4,6883,9463,652
Grants 1,5751,5252,063
Administrative costs 433478603
Fundraising costs 2,1752,0521,755
Total spending 8,8718,0008,073
Cash flow from operations 1,651(87)(5)
Capital spending 0033
Funding reserves 16,46214,44916,091

Note: Ci adjusted for unrealized losses, decreasing revenues by $387k in F2019 and $37k in F2018. Ci reports lotteries net of expenses, decreasing revenues and expenses by $43k in F2019, $47k in F2018, and $54k in F2017.    

Salary Information

Full-time staff: 30

Avg. Compensation: $80,818

Top 10 staff salary range:

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
1
$160k - $200k
0
$120k - $160k
5
$80k - $120k
0
$40k - $80k
4
< $40k
0

Information from most recent CRA Charities Directorate filings for F2018

My anchor

Comments & Contact

Comments added by the Charity:

No comments have been added by charity

Charity Contact

Website: www.als.ca
This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 416.497.2267

Print