ALS Society of Canada
Toronto, ON M5G 1E6
CEO: Tammy Moore
Board Chair: Genevieve Bertrand
Charitable Reg. #: 10670 8977 RR0002
Grade: A-The grade is based on the charity's public reporting of the work it does and the results it achieves.
Need for Funding
Cents to The Cause
Full-time staff #30
Avg. Compensation $72,797
Top 10 Staff Salary Range
|$300k - $350k||0|
|$250k - $300k||0|
|$200k - $250k||1|
|$160k - $200k||1|
|$120k - $160k||2|
|$80k - $120k||1|
|$40k - $80k||5|
About ALS Society of Canada:
Founded in 1977, ALS Society of Canada (ALS Canada) works to improve the lives of people living with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's Disease, and invest in research to make ALS a treatable, not terminal, disease. People with ALS suffer from progressive degeneration of motor neurons in their nervous system, which leads to impaired muscle movement, muscle weakness, impaired speech, and difficulty breathing. There is currently no cure or effective treatment for the disease, and approximately 80% of ALS patients die within 2 to 5 years of diagnosis.
ALS Canada focuses on three areas: providing patient support in Ontario, funding ALS research, and nationally raising awareness and advocacy for the disease.
In 2016, ALS Canada granted $3.5m (including $2.9m spent in 2016 and $0.6m deferred for future years) that funded 20 ALS research projects. Most of these grants were matched 1:1 by Brain Canada, bringing total ALS research funding to $6.2m. The charity awarded two Hudson Translational Team grants in 2016: one to Dr. Robertson and her research team at University of Toronto ($1.6m over five years), and one to Dr. Rouleau and his research team at McGill University ($2.2m over five years). The charity also distributed seven Discovery grants, three Career Transition awards, two postdoctoral fellowships, two doctoral research awards, and four bridge grants. In July 2016, ALS researchers at University of Massachusetts made a major breakthrough with the discovery of the gene NEK1 as an important player in ALS development. The gene is one of the most common genes that contribute to disease development and thus poses as a potential target for future therapies. The discovery was made through Project MinE, a gene-sequencing project funded by the American ALS Association through ALS Ice Bucket Challenge donations.
ALS Society of Canada’s patient support services in Ontario helped over 1,100 people with ALS in 2016, including over 250 newly registered clients. ALS Canada spent $2.3m on Ontario client support services in 2016. The charity states that at any time, 850 people in Ontario benefit from its support and services. ALS Canada runs support groups and makes home visits with the goal of helping ALS patients with the emotional struggles of the disease. In 2016, ALS Canada made over 1,000 visits and ran over 175 support groups across the province. The charity’s Ontario Equipment program provides ALS patients with aids like walkers, wheelchairs, stair lift systems and bathroom aid equipment. To help ALS patients, ALS Canada lends used equipment and offers funding assistance for people leasing or renting equipment. Through the Equipment program, ALS Canada received over 3,500 requests for equipment in 2016, up 34% from the year before.
ALS Canada reports spending $112k in 2016 on advocacy. This lobbying resulted in the Canadian government creating an all-party ALS Caucus on Parliament Hill during the year. The charity is also actively lobbying government to pass Bill S-201, which would prevent genetic discrimination if passed.
ALS Society of Canada is a big-cap charity with total donations of $6.4m in F2016. 2014 was a remarkable year with the Ice Bucket Challenge bringing a windfall of $14.4m in donations to ALS Canada. In F2015 and F2016, donations returned to "normal" levels. In F2016, administrative costs were 8% of revenues and fundraising costs were 26% of donations. Per dollar donated to the charity, $0.66 went toward its programs and grants, which falls just within Ci’s reasonable range for overhead spending.
ALS Society of Canada has funding reserves of $18.3m, of which $1.0m are donor-endowed. Excluding these donor-endowed funds, the charity’s funding reserves cover annual programs and current research grants for 2.7 years.
This profile is an update that is currently being reviewed by ALS Canada. Comments and edits may be forthcoming.
Updated on August 21, 2017 by Katie Khodawandi. Financial analysis completed by Kate Bahen, CFA.
Financial RatiosFiscal year ending December
|Administrative costs as % of revenues||8.2%||11.8%||3.5%|
|Fundraising costs as % of donations||25.5%||28.4%||12.7%|
|Program cost coverage (%)||281.6%||402.0%||483.3%|
Summary Financial StatementsAll figures in $000s
|Goods in kind||251||189||0|
|Cash flow from operations||(1,851)||(754)||13,562|