13351 Commerce Parkway
Richmond, BC V6V 2X7
Executive Director: Wendy Toyer
Board President: Sheldon Cleaves

Charitable Reg. #:10670 8985 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

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✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

A-

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

89%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 89 cents are available for programs.



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OVERVIEW

About ALS BC:

Founded in 1981, the Amyotrophic Lateral Sclerosis Society of British Columbia (ALS BC) aims to provide support to people affected by ALS and their families to ensure they have the best quality of life. ALS BC is one of eight independent charities that belong to the ALS Societies across Canada. The charity states that roughly 3,000 Canadians are currently living with ALS. The disease slowly paralyzes people by preventing the brain from communicating with muscles. Over time, people living with ALS will lose the ability to walk, talk, eat, swallow, and breathe. In F2020, ALS BC helped 498 people. The charity has three main programs: Support Services, Research, and Outreach and Public Awareness. 

Support Services is ALS BC’s largest program accounting for 70% of program spending in F2020. This program contains eight subprograms: equipment loan, transportation support, support groups, psychological treatment services, day of caring for caregivers, Camp Alohi Lani, care connections, and mobile clinics. The charity loaned 1,344 pieces of equipment to ALS patients in F2020. The charity has recently begun purchasing lower-cost equipment for patients instead of loaning to avoid expensive delivery charges. In F2020, 85 support group meetings were held for people affected by ALS. ALS BC provides free psychological support counselling to ALS patients, their families and caregivers. The program supported 35 families with 241 sessions in F2020, a 23% decrease over 315 sessions in F2019. To combat covid-19 restrictions the charity also made 484 phone calls to patients in F2020. ALS BC’s care connections program connects caregivers to patients that need assistance with services such as meals and rides to appointments. 41 families used this program in F2020. ALS BC’s mobile clinics provided virtual treatments to patients who have travel concerns. Lastly, ALS BC runs camp Alohi Lani for youth who have a parent or grandparents living with ALS to allow them to meet others in similar circumstances. In F2020, the camp was cancelled due to the covid-19 pandemic.

Research accounted for 21% of program spending. The charity reports giving $203k to research through ALS Canada. ALS Canada funded 11 research studies in F2020. In F2020, ALS BC launched ALS BC PROJECT HOPE, a research endowment fund aimed to provide access to ALS clinical trials in BC through a partnership with the University of BC. 

Outreach and Public Awareness accounted for the final 9% of program spending in F2020. ALS BC published three articles that generated over 50,000 impressions each. The charity also had five interviews on ALS research and aired a short infomercial on TV and radio to promote ALS Awareness month in June. 

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Results and Impact

ALS BC's three published articles had an engagement rate of 4.1% in F2020. 

While Ci highlights these key results, they may not be a complete representation of ALS BC's results and impact. This charity is not yet rated on impact (n/r).  

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Finances

ALS BC has donations and special event revenues of $3.4m in F2020. The charity received $1.1m in government funding, representing 20% of total revenues. Administrative costs are 5% of revenues (less investment income) and fundraising costs are 6% of donations and special events. This results in total overhead spending of 11%. For every dollar donated, 89 cents go to the cause. This is within Ci’s reasonable range for overhead spending.

ALS BC has $7.5m in funding reserves, of which $1.9m is donor endowed. Excluding donor-endowed funds, the charity could cover 635% or over six years of annual program costs with current reserves.

This charity report is an update that has been sent to Amyotrophic Lateral Sclerosis Society of British Columbia for review. Changes and edits may be forthcoming. 

Updated on August 18, 2021 by Brenleigh Jebb.

 

Financial Review


Financial Ratios

Fiscal year ending December
202020192018
Administrative costs as % of revenues 5.5%10.2%8.8%
Fundraising costs as % of donations 5.9%13.6%10.0%
Total overhead spending 11.4%23.9%18.8%
Program cost coverage (%) 635.4%242.1%226.6%

Summary Financial Statements

All figures in $000s
202020192018
Donations 2,7241,0521,608
Goods in kind 341334332
Government funding 1,104211218
Fees for service 234
Lotteries (net) 271196197
Special events 7011,073988
Investment income 26131338
Total revenues 5,4043,1813,383
Program costs 769876779
Grants 203232196
Administrative costs 283294295
Fundraising costs 201289259
Other costs 232118
Total spending 1,4781,7121,547
Cash flow from operations 3,9261,4691,836
Capital spending 11914887
Funding reserves 7,4564,1643,543

Note: Ci reported endowment fund contributions increasing donations by $45k in F2020, $32k in F2019, and $9k in F2018. Ci was unable to report Lotteries net of costs. Ci removed amortization from program, administrative, and fundraising costs on a pro-rata basis. ALS BC does not report government funding on its audited financial statements. Ci reported Government funding from the charity's T310 filing with the CRA and backed out amounts from donations in F2019 and F2018. 

Salary Information

Full-time staff: 7

Avg. compensation: $78,202

Top 10 staff salary range:

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
0
$160k - $200k
0
$120k - $160k
1
$80k - $120k
0
$40k - $80k
6
< $40k
0

Information from most recent CRA Charities Directorate filings for F2020

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Comments & Contact

Comments added by the Charity:

ALS SOCIETY OF BC PROJECT HOPE

In May 2021, the ALS Society of BC had raised $5.3 million for the ALS Society of BC PROJECT HOPE through the provincial government's grants; fundraising activities, individual donations from patients, their families, and donors; surplus from the previous year and ALS Adventure Challenge Endowed Fund.

The ALS Society of BC Project Hope will establish an ALS research professorship in collaboration with the University of British Columbia (UBC).  This new, permanent ALS dedicated clinician/scientist will offer patient care and further improve patient outcomes and research, with the goal of increasing access to clinical trials in British Columbia for local patients.

UBC partners with ALS Society of British to accelerate life-changing research; read more...

Charity Contact

Website: www.alsbc.ca
This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 604 278 2257

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