13351 Commerce Parkway
Richmond, BC V6V 2X7
Executive Director: Wendy Toyer
Board President: Sheldon Cleaves

Charitable Reg. #:10670 8985 RR0001


Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 4/5]



Audited financial statements for current and previous years available on the charity’s website.



Grade based on the charity's public reporting of the work it does and the results it achieves.



The demonstrated impact per dollar Ci calculates from available program information.


Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.



For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 75 cents are available for programs.

My anchor


About ALS BC:

Founded in 1981, the Amyotrophic Lateral Sclerosis Society of British Columbia (ALS BC) provides support to people affected by ALS and their families to ensure they have the best quality of life. The charity states that roughly 3,000 Canadians are currently living with ALS. The disease slowly paralyzes people by preventing the brain from communicating with the muscles of the body that typically are able to move at will. Over time, people living with ALS will lose the ability to walk, talk, eat, swallow, and breathe. ALS BC has three main programs: support services, research, and outreach and public awareness.

Support Services is ALS BC’s largest program making up almost 90% of program spending. This program contains eight subprograms: equipment loan, transportation support, support groups, psychological treatment services, day of caring for caregivers, camp Alohi Lani, care connections, and mobile clinics. The charity currently owns 3,182 pieces of equipment that are available for loaning. In F2018, ALS BC filled 1,928 requests for equipment and had 1,602 records of maintenance. The Support groups program provides an open environment for people affected by ALS to share their experiences and held 66 meetings throughout the year. ALS BC provides free psychological support counselling to ALS patients, their families and caregivers. Since the program’s creation in 2012, 242 families have been supported. Through the day of caring program, the charity hosted 4 events in F2018 to provide caregivers with a day of rest.  Every summer, ALS BC runs camp Alohi Lani for youth who have a parent or grandparents living with ALS to allow them to meet others in similar circumstances who they can relate to. In F2018, 23 campers attended. ALS BC’s care connections program connects caregivers with support workers who can help care for the patient by delivering services such as meals and rides to appointments. There were 45 families that used this program in F2018.  Lastly, ALS BC operates mobile clinics to provide treatment to patients who have travel concerns. In F2018, the charity ran four clinics and made 120 deliveries to people. 

ALS BC contributes to research projects that are controlled by ALS Canada. In F2018, ALS BC granted $67k (7% of 2018 program costs) to ALS Canada for research. ALS Canada funded 14 new research projects and invested over $1.7 million to research in F2018. ALS Canada also reports on 10 active clinical trials that aim to either slow the progression of ALS or to help manage the symptoms.

My anchor


ALS Society of BC is a medium-sized charity with total donations and special events fundraising of $2.8m in F2018. Administrative costs are 12% of revenues and fundraising costs are 13% of donations. For every dollar donated, 75 cents go to the cause. This is within Ci’s reasonable range for overhead expenditures.

ALS BC holds funding reserves of $3.5m, of which $3.0m are donor-endowed. Excluding donor-endowed funds, the charity’s funding reserves can cover programs for 6 months.

This charity report is an update that has been sent to ALS Society of BC. Comments and edits may be forthcoming.

Updated on July 11, 2019 by Stefan Tetzlaff.

Financial Review

Financial Ratios

Fiscal year ending December
Administrative costs as % of revenues 12.0%15.7%20.0%
Fundraising costs as % of donations 12.7%19.8%21.4%
Program cost coverage (%) 69.1%70.9%33.3%

Summary Financial Statements

All figures in $s
Donations 1,817,055880,508672,641
Goods in kind 331,652312,248207,128
Fees for service 3,9202,7352,710
Business activities (net) 196,500183,000166,500
Special events 988,127833,553853,019
Investment income 37,539157,457118,766
Total revenues 3,374,7932,369,5012,020,764
Program costs 1,128,2171,063,9321,072,216
Grants 66,88747,19054,349
Administrative costs 401,700346,811379,576
Fundraising costs 355,158339,730325,970
Total spending 1,951,9621,797,6631,832,111
Cash flow from operations 1,422,831571,838188,653
Capital spending 8733,220134,180
Funding reserves 3,543,2412,537,6562,054,624

Note: Amortization of capital assets has been removed from program, administrative and fundraising costs on a pro-rata basis. 

Salary Information

Full-time staff: 7

Avg. Compensation: $67,659

Top 10 staff salary range:

$350k +
$300k - $350k
$250k - $300k
$200k - $250k
$160k - $200k
$120k - $160k
$80k - $120k
$40k - $80k
< $40k

Information from most recent CRA Charities Directorate filings for F2017

My anchor

Comments & Contact

Comments added by the Charity:

Charity comments are from a previous profile: 



Equipment Loan Program

With 2,900 pieces of medical equipment, our Equipment Loan Program is designed to help people cope with the daily challenges of decreasing mobility and independence through obtaining basic and essential assistive equipment. This includes mobility equipment, lift equipment, beds and accessories, communication devices and bathroom aids. All equipment loaned is available at no charge to registered ALS patients.

Transportation Support Program

For people living with ALS who are unable to fund transportation themselves, the Transportation Support Program provides transportation to attend appointments at the ALS Centre in Vancouver and other ALS-related medical appointments, support groups and society events. The program was initiated to ensure that all people living with ALS in BC and Yukon are given an equal opportunity to see an ALS specialist in order to improve their quality of life.  

Support Groups

Support groups provide an open, friendly and safe environment for ALS patients, family members, caregivers and friends to discuss issues related to living with ALS. Groups are facilitated by trained volunteers and staff.

Psychological Support Program

Psychological services are available free of charge at locations across BC. Registered psychologists and clinical counsellors provide therapy and counselling to ALS patients, their families and caregivers at any stage of the illness. Services will be provided throughout the disease and up to one year following.

Caregivers’ Days                                             

Held in communities around BC, Caregivers’ Day is a chance for caregivers and former caregivers of ALS patients to have a day of respite. This event allows ALS caregivers to come together and share experiences. It also provides opportunities for caregivers to learn how to take better care of themselves and how to cope with grief.  

Camp Alohi Lani

Camp Alohi Lani, which means ‘Bright Sky’ in Hawaiian, is a camp for youth who have a parent (or grandparent in a significant role) living with ALS. Through funding received from sponsors, the Society is able to offer a youth weekend retreat at no cost to families affected by ALS. The camp is a safe setting in which youth aged 8 to17 can come together and receive support on their ALS journey.

Care Connections

The primary purpose of forming a Care Connection is to reduce caregiver responsibilities and lessen the worry the person with ALS has about their caregiver. By caring for the caregiver, the person with ALS is helped as  well. The ALS Society of BC’s Care Connection is a program to aid your own group of caring family and friends to help their loved ones with ALS and their caregivers.


In partnership with Vancouver Coastal Health and the ALS Centre @ GF Strong Rehab Centre, the ALS Society of BC provides Mobile Clinics to outlying communities. ALS Centre healthcare professionals and an ALS Society of BC representative travel to clinic locations to provide follow-up appointments for people challenged to travel.

All that is required to access these programs is the patient’s registration with ALS Society of BC. No fees are charged. Services available to people living with ALS in British Columbia and the Yukon.

Charity Contact

Website: www.alsbc.ca
This email address is being protected from spambots. You need JavaScript enabled to view it.