13351 Commerce Parkway
Richmond, BC V6V 2X7
Executive Director: Wendy Toyer
Board President: Vandhana Misri

Charitable Reg. #: 10670 8985 RR0001
Sector: Health
Operating Charity

Charity Rating

[Charity Rating: 4/4]

Social Results Reporting

Grade: B

The grade is based on the charity's public reporting of the work it does and the results it achieves.

Financial Transparency

Audited financial statements for current and previous years available on the charity's website [ Audited financial statement for most recent year ]

Program Cost Coverage

Funding Reserves Program Costs

Spending Breakdown

Full-time staff #8

Avg. Compensation $54,947

Top 10 Staff Salary Range

$350k + 0
$300k - $350k 0
$250k - $300k 0
$200k - $250k 0
$160k - $200k 0
$120k - $160k 1
$80k - $120k 0
$40k - $80k 5
< $40k 2
Information from most recent CRA Charities Directorate filings for F2014

About ALS BC:

Founded in 1981, the Amyotrophic Lateral Sclerosis Society of British Columbia (ALS BC) aims to improve the lives of people living with ALS. The disease is debilitating and has an average life expectancy of three to five years after diagnosis. Patients suffer from progressive muscle loss and need extensive care services and equipment. On average, patients face equipment costs of $137,000 to help with mobility.

The charity's spending is broken down into three major areas: providing direct support to ALS patients and families; funding research projects that study treatments and/or a possible cure for ALS; and promoting public awareness on the issues ALS patients face.

ALS BC focuses primarily on its patient service programs. The Equipment Loan Program reduces the expensive equipment costs ALS patients face by providing equipment free of charge. ALS BC made 2389 equipment deliveries in 2015 and served more people than in previous years.

The ALS Research Program funded 34 projects in 2015 to speed up progress in improved treatments and a possible cure for ALS. The 2015 annual report listed major discoveries made by funded research projects during the year, including two causative proteins of the disease and one possible disease target. If deemed an effective target antigen, this discovery could be important in designing new drug treatments.

The ALS Ice Bucket Challenge received lots of publicity in F2014 and brought in over $2m in donations for the year. As addressed in the F2015 annual report, donations from this awareness campaign have dropped significantly from F2014 to F2015.

Financial Review:

ALS BC is a medium-sized charity that collected just over $1m in donations in F2015, which is a 63% drop from F2014. Decreased donations are due to lower ALS Ice Bucket Challenge collections ($40k in F2015 versus $2.1m in F2014).

Administrative costs are 13% of total revenue and fundraising costs are 17% of total donations, falling within Ci's reasonable range for overhead spending.

ALS BC has funding reserves of $1.9m, with $1.6m being donor-endowed. The charity's funding reserves cover only 35% of annual program costs when donor-endowed funds are not included, indicating a need for funding.

This charity report is an update that is being reviewed by ALS BC. Changes and edits may be forthcoming.

Updated on May 25, 2016 by Katie Khodawandi.

Financial Ratios

Fiscal year ending December
Administrative costs as % of revenues 13.4%6.6%14.2%
Fundraising costs as % of donations 17.2%12.6%19.2%
Program cost coverage (%) 192.2%58.8%165.3%

Summary Financial Statements

All figures in $s
Donations 1,007,7072,724,412648,317
Goods in kind 21,7172,8185,899
Fees for service 3,2934,0003,520
Business activities (net) 159,000149,000148,000
Special events 948,9891,078,8651,012,024
Investment income 19,75760,24078,222
Total revenues 2,160,4634,019,3351,895,982
Program costs 924,619752,297755,975
Grants 57,7021,967,91392,427
Administrative costs 286,127259,245257,164
Fundraising costs 336,584478,730318,400
Cash flow from operations 555,431561,149472,016
Funding reserves 1,888,0521,598,2771,402,224
Note: Donated goods-in-kind are reported gross of amortization of deferred capital contributions, reducing revenues by $286k in F2015, $354k in F2014 and $354k in F2013. Amortization of capital assets has been removed from program, administrative and fundraising costs based on percentage of total expenses.

Comments added by the Charity:



Equipment Loan - Through this program, the Society is able to provide equipment (ie: mobility equipment such as walkers and wheelchairs; communication equipment such as speech communication devices and head mouse) at no cost to ALS patients.    Annual Cost - $567,500


ALS Research - Through this program, the Society is able to provide annual funding to genetic testing and annual contribution to ALS Canada to fund various ALS research initiatives. Annual Cost - $250,000


Better Health Care Access Services

  • Patient Transportation Support – Through this program, the Society is able to provide transportation support to ALS patients, to attend medical appointments, support groups and ALS Society of BC events.  Annual Cost - $50,000
  • Support to ALS Centre – This program provides financial support to ALS Centre to host clinical trials and to  increase clinic hours of the neurologist at the Centre to ensure appointments of ALS patients can be made in a timely manner.                Annual Cost - $30,000
  • Mobile Clinics - In partnership with Vancouver Coastal Health and ALS Centre at GF Strong Rehab Centre, the ALS Society of BC provides mobile clinics to outlying communities, to provide follow-up appointments to patients who can no longer travel to the ALS Centre in Vancouver.  The ALS Centre team also provides in-service training about ALS to caregivers and healthcare professionals.  Annual Cost - $5,000


Outreach & Public Awareness – This program provides an opportunity for the society to release ALS and patient services information through Believe BC feature in the Vancouver Sun and The Province newspapers 3 times a year, an ALS BC newsletter 3 times a year, an ALS Society of BC website and  ALS BC informational brochures and banners.  Annual Cost - $61,500


Psychological Support Program – This program provides specialized ALS counseling service to patients, their caregivers and families at any stage of the illness.

Annual Cost - $9,500


Camp Alohi Lani – This program is a support camp for children affected by ALS where a parent or grandparent in a significant role is living with ALS. Through friendships made, a circle of support is created. Camp fees and travel costs are covered for participants.

Annual Cost - $30,000


Team ALS BC Volunteer Program – This program provides volunteer opportunities and training for patients, their families and friends to support the cause of the ALS Society of BC through fundraising events, patient services and office support.

Annual Cost - $38,050


Caregivers’ Day - Held every fall in BC communities, Caregivers’ Day is a chance for caregivers and former caregivers of ALS patients to have a day of respite.  Annual Cost - $13,000


ALS Symposium – This program is an annual event that provides ALS research updates and new information on patient services to help improve the quality of life of ALS patients and their families. Annual Cost - $10,000


Patient and Family Support

  • Provides support on accessing services within the health care system.  The Society also assists patients to access other community support and resources.
  • Support Group – The monthly support group meetings facilitated by trained volunteers and staff provide an open, friendly and safe environment for ALS patients, their families and friends to discuss issues related to living with ALS.
  • Care Connections - The Care Connection is a program that aid group of caring family and friends to help loved ones with ALS and their caregivers by using customized on-line web tool developed by the Society and Lotsa Helping Hands.
  • Extraordinary Patient Services (2014 Pilot Program) The purposes of this program is to support and assist ALS patients with extraordinary needs.  These needs that would not be covered by the society’s existing program and fall outside the perimeters of existing resources available through government and community programs.  Application is required to avail of this service (each request will undergo review and evaluation).

Annual Cost - $31,550


Patient Priority Survey – This annual confidential survey is released to patients and caregivers, to assess the need of people dealing with ALS and to ensure quality control of patient services and programs of the society.


Annual Cost - $1,700

Note that the annual cost of each program does not reflect administrative expenses.

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