ALS BC

13351 Commerce Parkway
Richmond, BC V6V 2X7
Executive Director: Wendy Toyer
Board President: Vandhana Misri

Website: www.alsbc.ca
Charitable Reg. #: 10670 8985 RR0001
Sector: Health
Operating Charity

Charity Rating

[Charity Rating: 4/4]

Donor Accountability

Grade: B

The grade is based on the charity's public reporting of the work it does and the results it achieves.

Financial Transparency

Audited financial statements for current and previous years available on the charity's website [ Audited financial statement for most recent year ]

Need for Funding

donor
endowed
Funding Reserves Program Costs

Spending Breakdown

Full-time staff #8

Avg. Compensation $59,834

Top 10 Staff Salary Range

$350k + 0
$300k - $350k 0
$250k - $300k 0
$200k - $250k 0
$160k - $200k 0
$120k - $160k 1
$80k - $120k 0
$40k - $80k 4
< $40k 3
Information from most recent CRA Charities Directorate filings for F2015

About ALS BC:

Founded in 1981, the Amyotrophic Lateral Sclerosis Society of British Columbia (ALS BC) helps improve the lives of people affected by ALS – this includes ALS patients, family members and caregivers. The disease is debilitating and has an average life expectancy of 3-5 years after diagnosis. ALS BC states that roughly 4,000 Canadians live with the disease. Patients suffer from progressive muscle loss and need extensive care services and equipment. ALS BC has 3 major program spending buckets: direct support to ALS patients and families; research funding for projects that study treatments and cures for ALS; and promoting public awareness on issues ALS patients face.

Patient Services is ALS BC’s largest program and includes 8 subprograms. The Equipment Loan program helps people with ALS afford mobility and lift equipment, beds, communication devices and bathroom aids. ALS BC has 2,900 pieces of equipment available to eligible people. The charity reports making 2,331 equipment deliveries, filling 1,727 equipment requests and responding to 1,394 cleaning & repair requests in F2016. The Care Connections program helps lighten the load of caregiver responsibilities by helping caregivers – 39 families use the program as of F2016, increasing from 25 families in F2015. Support Groups are run by trained volunteers for ALS patients, family members, caregivers and friends who want to talk about issues related to the disease. The charity ran 65 meetings in F2016. Camp Alohi Lani is a camp for kids with family members living with ALS. 26 campers participated in F2016. Psychological Treatment Services give ALS patients, family members and caregivers access to therapy and counselling by registered psychologists. Transportation Support is a service for ALS patients attending events and appointments offered by ALS BC – the charity made 292 trips in F2016. ALS BC also runs Mobile Clinics in remote communities as well as Caregiver Days for  caregivers who need a day of rest. 

ALS BC also contributes to research funding controlled by ALS Canada. ALS BC reported $54k in research grants to ALS Canada in F2016, which is 5% of total program costs. Included in funded research is Project MinE. This project receives support from 15 countries and aims to map DNA profiles of 15,000 ALS patients. From this data, researchers hope to find a genetic signature amongst ALS patients that explains disease development. ALS Canada also reports 10 active clinical trials for therapies that slow disease progression or treat ALS symptoms.

Financial Review:

ALS BC is a medium-sized charity with total donations and special events fundraising of $1.5m in F2016. Administrative costs are 16% of revenues and fundraising costs are 17% of donations. Per dollar donated, $0.67 goes to the cause. This falls just within Ci’s reasonable range for overhead spending.

ALS BC holds funding reserves of $2.1m, of which $1.8m are donor-endowed. Excluding donor-endowed funds, the charity’s reserves can cover only 33% of annual program costs, indicating a funding need.

This charity report is an update that is currently being reviewed by ALS BC. Comments and edits may be forthcoming.

Updated on May 11, 2017 by Katie Khodawandi.

Financial Ratios

Fiscal year ending December
201620152014
Administrative costs as % of revenues 16.1%11.8%6.0%
Fundraising costs as % of donations 17.3%17.2%12.6%
Program cost coverage (%) 223.2%192.2%58.8%

Summary Financial Statements

All figures in $s
201620152014
Donations 672,6411,007,7072,724,412
Goods in kind 207,128307,399356,939
Fees for service 2,7103,2934,000
Business activities (net) 166,500159,000149,000
Special events 853,019948,9891,078,865
Investment income 118,76619,75760,240
Total revenues 2,020,7642,446,1454,373,456
Program costs 866,211924,619752,297
Grants 54,34957,7021,967,913
Administrative costs 306,648286,127257,655
Fundraising costs 263,341336,584480,321
Cash flow from operations 530,215841,113915,270
Funding reserves 2,054,6241,888,0521,598,277
Note: Amortization of capital assets has been removed from program, administrative and fundraising costs on a pro-rata basis, reducing expenses by $342k in F2016, $314k in F2015 and $329k in F2014. 

Comments added by the Charity:

ALS SOCIETY OF BC PATIENT SERVICES AND PROGRAMS

 

Equipment Loan Program

With 2,900 pieces of medical equipment, our Equipment Loan Program is designed to help people cope with the daily challenges of decreasing mobility and independence through obtaining basic and essential assistive equipment. This includes mobility equipment, lift equipment, beds and accessories, communication devices and bathroom aids. All equipment loaned is available at no charge to registered ALS patients.

 

Transportation Support Program

For people living with ALS who are unable to fund transportation themselves, the Transportation Support Program provides transportation to attend appointments at the ALS Centre in Vancouver and other ALS-related medical appointments, support groups and society events. The program was initiated to ensure that all people living with ALS in BC and Yukon are given an equal opportunity to see an ALS specialist in order to improve their quality of life.  

 

Support Groups

Support groups provide an open, friendly and safe environment for ALS patients, family members, caregivers and friends to discuss issues related to living with ALS. Groups are facilitated by trained volunteers and staff.

 

Psychological Support Program

Psychological services are available free of charge at locations across BC. Registered psychologists and clinical counsellors provide therapy and counselling to ALS patients, their families and caregivers at any stage of the illness. Services will be provided throughout the disease and up to one year following.

 

Caregivers’ Days                                             

Held in communities around BC, Caregivers’ Day is a chance for caregivers and former caregivers of ALS patients to have a day of respite. This event allows ALS caregivers to come together and share experiences. It also provides opportunities for caregivers to learn how to take better care of themselves and how to cope with grief.  

 

Camp Alohi Lani

Camp Alohi Lani, which means ‘Bright Sky’ in Hawaiian, is a camp for youth who have a parent (or grandparent in a significant role) living with ALS. Through funding received from sponsors, the Society is able to offer a youth weekend retreat at no cost to families affected by ALS. The camp is a safe setting in which youth aged 8 to17 can come together and receive support on their ALS journey.



Care Connections

The primary purpose of forming a Care Connection is to reduce caregiver responsibilities and lessen the worry the person with ALS has about their caregiver. By caring for the caregiver, the person with ALS is helped as  well. The ALS Society of BC’s Care Connection is a program to aid your own group of caring family and friends to help their loved ones with ALS and their caregivers.

 

MOBILE CLINICS

In partnership with Vancouver Coastal Health and the ALS Centre @ GF Strong Rehab Centre, the ALS Society of BC provides Mobile Clinics to outlying communities. ALS Centre healthcare professionals and an ALS Society of BC representative travel to clinic locations to provide follow-up appointments for people challenged to travel.



All that is required to access these programs is the patient’s registration with ALS Society of BC. No fees are charged. Services available to people living with ALS in British Columbia and the Yukon.

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