Crohn's and Colitis
Toronto, ON M4T 1N5
President & CEO: Mina Mawani
Board Chair: Harvey Doerr
Charitable Reg. #: 11883 1486 RR0001
Grade: B+The grade is based on the charity's public reporting of the work it does and the results it achieves.
Need for Funding
Full-time staff #44
Avg. Compensation $80,213
Top 10 Staff Salary Range
|$300k - $350k||0|
|$250k - $300k||0|
|$200k - $250k||1|
|$160k - $200k||0|
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|$80k - $120k||6|
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About Crohn's and Colitis:
Founded in 1974, Crohn’s and Colitis Canada (CCC) is the only national charity in Canada fighting to help those affected by Crohn’s disease and ulcerative colitis. Both diseases are major forms of inflammatory bowel disease (IBD). CCC states that 1 in 150 Canadians live with Crohn’s disease or ulcerative colitis, and Canada has one of the highest rates for these diseases in the world. People with Crohn’s disease suffer from inflammation anywhere in the gastrointestinal tract. Those with ulcerative colitis suffer from inflammation in the large intestine. Common symptoms of both diseases include painful bowel movements, bloody stool, reduced appetite and/or nausea. There is currently no cure for either disease.
Most of Crohn’s and Colitis Canada’s program spending goes toward research (73% of program and grant spending in F2016). CCC has two main research priorities. Advancing discovery funding focuses on recruiting top IBD researchers, investigating causes and triggers of IBD, and discovering new treatments for complications, inflammation and improved therapies. Improving Lives funding focuses on improving symptom management, helping patients access the best care, and educating healthcare professionals on the latest and best IBD-related information. CCC ran three scientific conferences and distributed 27 research grants and 14 fellowship and studentship training awards during the year. Through these activities, the charity funded 13 major hospitals and universities. CCC-funded researchers published over 600 articles and book chapters in F2016. Started in 2008, the Genetics, Environmental, Microbial project (GEM) is considered one of CCC’s “jewel” funded research studies focused on causes of Crohn’s disease at the DNA, bacterial and environmental level. The study expanded to 88 sites in 2016 and total recruitment reached 4,300 people, 14% away from the project’s recruitment goal.
Education, awareness and advocacy spending made up 18% of program costs and grants in F2016. Crohn's and Colitis Canada runs patient programs to improve the quality of life for those with Crohn’s disease and colitis. Over 10,000 people took part in patient programs in F2016. CCC introduced two new patient programs in 2015: The Gutsy Peer Support program, which provides support to people recently diagnosed, and Camp Got2Go, which connects children living with IBD who share common ground with their diagnosed. 100 kids participated in Camp Got2Go in F2016. CCC’s advocacy program voices policy change proposals to the Canadian government. The proposals focus on improving treatment access, washroom availability and caregiver support. In F2016, the charity contributed to the approval of two new drug treatments for IBD in Canada. CCC also reports that its GoHere washroom access campaign added over 400 Husky gas stations to its campaign during the year. CCC’s awareness program reduces the stigma surrounding IBD by educating the public on the issues IBD patients face. In F2016, the charity brought IBD into the public eye with 200 million media impressions.
Crohn’s and Colitis Canada is a big-cap charity with total donations and special events fundraising of $16.5m in F2016. Administrative costs are 8% of revenues and fundraising costs are 22% of donations and special events fundraising. Per dollar donated to the charity, $0.71 goes towards its programs and grants, which falls within Ci’s reasonable range for overhead spending. CCC’s funding reserves of $12.6m include a $469k endowment fund. Excluding this endowment, the charity’s reserves can cover annual program and grant costs for 1.4 years.
Crohn’s & Colitis Canada’s seven-year Make it stop. For life. campaign has raised $44m since starting in F2014. The charity aims to raise $100m by 2020.
CCC holds an internally-restricted research reserve fund that represents estimated amounts to be honored as future research grant commitments. As of F2016, the fund holds $3.8m in future research grants to be committed within the next 12 months. This includes a $707k commitment towards the GEM Project.
This charity report is an update that is currently being reviewed by Crohn’s & Colitis Canada. Comments and edits may be forthcoming.
Updated on July 14, 2017 by Katie Khodawandi.
Financial RatiosFiscal year ending June
|Administrative costs as % of revenues||7.8%||11.6%||10.4%|
|Fundraising costs as % of donations||21.7%||31.8%||25.5%|
|Program cost coverage (%)||140.0%||105.9%||99.2%|
Summary Financial StatementsAll figures in $000s
|Cash flow from operations||2,754||(495)||269|