Huntington Society of Canada

151 Frederick St, Suite 400
Kitchener, ON N2H 2M2
CEO: Bev Heim-Myers
Board Chair: Dan Devlin

Charitable Reg. #: 11896 5516 RR0001
Sector: Health
Operating Charity

Charity Rating

[Charity Rating: 4/4]

Social Results Reporting

Grade: B

The grade is based on the charity's public reporting of the work it does and the results it achieves.

Financial Transparency

Audited financial statements for current and previous years available on the charity's website [ Audited financial statement for most recent year ]

Program Cost Coverage

Funding Reserves Program Costs

Spending Breakdown

Full-time staff #14

Avg. Compensation $78,436

Top 10 Staff Salary Range

$350k + 0
$300k - $350k 0
$250k - $300k 0
$200k - $250k 0
$160k - $200k 0
$120k - $160k 1
$80k - $120k 4
$40k - $80k 5
< $40k 0
Information from most recent CRA Charities Directorate filings for F2015

About Huntington Society of Canada:

Founded in 1973, Huntington Society of Canada (HSC) helps people and families affected by Huntington's disease (HD), which is an inherited brain disorder that affects one in every 1,000 Canadians. HD is dominant – children who have a parent with Huntington's have a 50% chance of inheriting the disease. Symptoms usually appear between the ages of 30 and 50 and include memory loss, cognitive decline, loss of muscle control and emotional changes. In its later stages, people with HD require professional nursing because they can no longer perform daily activities. HSC has four core programs: research, education and awareness, family services, and advocacy.

Huntington Society of Canada's Research program funds research to reverse, slow or prevent the progression of HD. HSC runs two grant competitions – the Navigator Research Program Grant and the New Pathways Research Program grant. In F2015, HSC funded 2 researchers through Navigator and 1 researcher through New Pathways. HSC discusses 5 HD clinical trials in its F2015 annual report, the most promising one being for a drug that acts by reducing the huntingtin protein.

Family Services programs consist of HSC's National Conference, HD clinics and a Youth Mentorship Program. HSC reports that its Family Services Workers serve over 15,000 people every year. The National Conference educates people on topics such as new research findings, clinical trials, care, testing and genetic discrimination. HSC reports a 10% increase in attendance at the conference in its F2015 annual report. HSC has 16 HD clinics across Canada, which are places where families can see neurologists, genetic counsellors and HSC social workers. The Youth Mentorship program matches youth who live in families affected by HD with an older peer. The program ran as a pilot in F2014 and HSC reports that it was very successful – the charity had to launch a third round of mentor recruitment, selection and training for the upcoming F2016 year.

Huntington Society of Canada's Advocacy program saw success when Canada's federal government passed Bill S-201 on April 14, 2016. This bill prohibits and prevents genetic discrimination, which people with HD face from employers, insurers and when trying to participate in clinical trials for disease treatments.

Financial Review:

Huntington Society of Canada is a medium-sized charity with total donations and fundraising income of $4.0m in F2015. Administrative costs are 11% of revenues and fundraising costs are 16% of donations and special events revenue. $0.27 of every donated dollar goes to overhead spending, which falls within Ci's reasonable range for overhead spending.

HSC holds funding reserves of $3.0m, of which 63% are endowed. Excluding endowed funds, HSC's funding reserves can cover 41% of annual program costs, indicating a funding need.

This charity report is an update that is currently being reviewed by Huntington Society of Canada. Changes and edits may be forthcoming.

Updated on August 25, 2016 by Katie Khodawandi.

Financial Ratios

Fiscal year ending June
Administrative costs as % of revenues 10.9%17.9%22.9%
Fundraising costs as % of donations 16.3%23.1%17.8%
Program cost coverage (%) 108.7%132.6%117.6%

Summary Financial Statements

All figures in $s
Donations 2,399,9452,070,6311,800,675
Special events 1,605,2781,583,6991,839,025
Investment income 206,434314,715252,079
Other income 52,059143,12642,006
Total revenues 4,263,7164,112,1713,933,785
Program costs 2,781,3812,213,7232,350,607
Administrative costs 443,561677,890844,185
Fundraising costs 654,509843,619646,183
Cash flow from operations 384,265376,94092,809
Funding reserves 3,024,0492,935,1842,764,429
Note: Ci reported expense figures from the charity’s T3010 CRA filing and backed out amortization on a pro-rata basis from program, administrative and fundraising costs.

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