Huntington Society of Canada

20 Erb St. W, Suite 801
Waterloo, ON N2L 1T2
CEO: Shelly Redman
Board Chair: Mack Erno

Charitable Reg. #:11896 5516 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 4/5]

✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

B

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

72%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 72 cents are available for programs.



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OVERVIEW

About Huntington Society of Canada:

Huntington Society of Canada is a 4-star charity. It has a B results reporting grade, which is average. Its overhead spending is within Ci’s reasonable range and it has reserve funds to cover one year of its annual program costs.

Founded in 1973, Huntington Society of Canada (HSC) helps people affected by Huntington’s Disease (HD). HD is an inherited brain disorder. Children with a parent who has HD have a 50% chance of inheriting the disease. HSC’s vision is a world free from Huntington’s Disease. HSC has four main programs: Research, Family Services, Public Awareness and Education, and Chapter and Volunteer Support.

Huntington Society of Canada spent $1.8m (40% of program spending) on Research in the fiscal year ending March 2024 (F2024). In 2023, HSC made a gift of $1.5m to the University Western Ontario to establish a perpetual endowed fund. The fund is named the "Huntington Society of Canada Research Chair" and will support research focused on the prevention, identification, and treatment of HD. The University matched HSC's contribution on a dollar-for-dollar basis, meaning there are $3 million currently in the fund. HSC's Navigator Research program has provided funds to support HD researchers since 2003. HSC offers awards of up to $75k/year through this program. HSC gave two Navigator Awards in F2024. HSC also provided $20k in funding to four undergraduate researchers through its Student Summer Fellowship. 

Huntington Society of Canada spent $1.6m (36% of program spending) on Family Services in F2024. This program provides direct support services, education, local community development, and aid for HSC’s national advocacy efforts. Direct support services, including counselling and support groups, are available to anyone affected by HD. In F2024, HSC had 2,738 active files. Resource Centre Directors (RCDs) from the Family Services team attended 268 HD clinic appointments in F2024. RCDs also made 463 home visits.

HSC spent $624k (14% of program spending) on Public Awareness and Education in F2024. HSC holds a yearly Light It Up 4 HD campaign. The campaign sees buildings and structures lit up blue and purple to raise awareness for HD. In F2024, over 100 sites across Canada participated. HSC updated three fact sheets on HD in F2024.

HSC spent $465k (10% of program spending) on Chapter and Volunteer Support in F2024. HSC has chapters across Canada. Chapters are made up of local families and volunteers who provide each other with informal support. In F2024, HSC hosted Young People Affected by Huntington’s Day (YPAHD). This is a one-day conference for youth affected by HD. 78 youths attended YPAHD. HSC also hosted an in-person national conference with over 250 attendees from different chapters.

 

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Results and Impact

Charity Intelligence could not find any quantified outcomes for Huntington Society of Canada. This may not be a complete representation of HSC’s results and impact.

This charity is not yet rated on impact (n/r).

 

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Finances

In F2024, Huntington Society of Canada received $4.6m in donations and special events revenue. It also received $178k in net gaming revenue (3% of total revenue). Administrative costs are 9% of revenue and fundraising costs are 19% of donations. Overhead spending is 28%, which is within Ci’s reasonable range. For every dollar donated, 72 cents are available for the cause. In F2024, HSC spent $4.5m on its programs (88% of total revenue).

In F2024, HSC had a deficit of $702k and spent $153k on capital expenditures.

At the end of F2024, HSC had $3.2m in reserve funds (cash and investments). $184k of reserve funds are donor endowed. Excluding donor-endowed funds, HSC has reserve funds to cover 67% or one year of its annual program costs.

This charity profile is an update that was sent to Huntington Society of Canada for review. Changes and edits may be forthcoming.

Updated on August 26, 2024 by Thea Clark.

Financial Review


Financial Ratios

Fiscal year ending March
202420232022
Administrative costs as % of revenues 9.4%25.7%17.9%
Fundraising costs as % of donations 18.5%19.4%17.4%
Total overhead spending 27.9%45.1%35.4%
Program cost coverage (%) 66.8%171.8%233.0%

Summary Financial Statements

All figures in $000s
202420232022
Donations 3,6282,1231,853
Goods in kind 021
Government funding 00347
Lotteries (net) 178176168
Special events 996882828
Investment income 28673(2)
Other income 583874
Total revenues 5,1453,2953,270
Program costs 4,5362,3271,859
Administrative costs 454829587
Fundraising costs 857583467
Total spending 5,8483,7382,913
Cash flow from operations (702)(443)357
Capital spending 153820
Funding reserves 3,2084,1624,492

Note: DEFERRED REVENUE: The charity uses deferred accounting. To show donors this information on a consistent basis, Ci adjusted for deferred revenue. This affected total revenue by ($33k) in F2024, $45k in F2023, and ($114) in F2022. DONATED GOODS IN KIND: Ci removed the value of donated goods in kind from special events and lottery revenue on a pro-rata basis and moved it to donated goods in kind. GOVERNMENT REVENUE: Ci used the charity’s T3010 filing with the CRA to determine government revenue. LOTTERIES: Ci reported gaming revenue net of expenses under lotteries, decreasing revenues and expenses by $nil in F2024, $3k in F2023, and $2k in F2022.

Salary Information

Full-time staff: 19

Avg. compensation: $45,840

Top 10 staff salary range:

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
0
$160k - $200k
1
$120k - $160k
0
$80k - $120k
4
$40k - $80k
5
< $40k
0

Information from most recent CRA Charities Directorate filings for F2023

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Comments & Contact

Comments added by the Charity:

No comments have been added by the charity.

Charity Contact

Website: www.huntingtonsociety.ca
This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 1-800-998-7398

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Charitable Registration Number: 80340 7956 RR0001