Crohn's and Colitis

600-60 St. Clair Avenue East
Toronto, ON M4T 1N5
President & CEO: Mina Mawani
Board Chair: Harvey Doerr

Charitable Reg. #: 11883 1486 RR0001
Sector: Health
Operating Charity

Donor Accountability

Grade: B+

The grade is based on the charity's public reporting of the work it does and the results it achieves.

Financial Transparency

Audited financial statements for current and previous years available on the charity's website [ Audited financial statement for most recent year ]

Need for Funding

Funding Reserves Program Costs

Spending Breakdown

Cents to The Cause

2014 2015 2016
For a dollar donated, cents funding the cause after fundraising and admin costs, excluding surplus.

Full-time staff #44

Avg. Compensation $80,213

Top 10 Staff Salary Range

$350k + 0
$300k - $350k 0
$250k - $300k 0
$200k - $250k 1
$160k - $200k 0
$120k - $160k 3
$80k - $120k 6
$40k - $80k 0
< $40k 0
Information from most recent CRA Charities Directorate filings for F2016

About Crohn's and Colitis:

Founded in 1974, Crohn’s and Colitis Canada (CCC) is the only national charity in Canada fighting to help those affected by Crohn’s disease and ulcerative colitis. Both diseases are major forms of inflammatory bowel disease (IBD). CCC states that 1 in 150 Canadians live with Crohn’s disease or ulcerative colitis, and Canada has one of the highest rates for these diseases in the world. People with Crohn’s disease suffer from inflammation anywhere in the gastrointestinal tract. Those with ulcerative colitis suffer from inflammation in the large intestine. Common symptoms of both diseases include painful bowel movements, bloody stool, reduced appetite and/or nausea. There is currently no cure for either disease.

Most of Crohn’s and Colitis Canada’s program spending goes toward research (73% of program and grant spending in F2016). CCC has two main research priorities. Advancing discovery funding focuses on recruiting top IBD researchers, investigating causes and triggers of IBD, and discovering new treatments for complications, inflammation and improved therapies. Improving Lives funding focuses on improving symptom management, helping patients access the best care, and educating healthcare professionals on the latest and best IBD-related information. CCC ran three scientific conferences and distributed 27 research grants and 14 fellowship and studentship training awards during the year. Through these activities, the charity funded 13 major hospitals and universities. CCC-funded researchers published over 600 articles and book chapters in F2016. Started in 2008, the Genetics, Environmental, Microbial project (GEM) is considered one of CCC’s “jewel” funded research studies focused on causes of Crohn’s disease at the DNA, bacterial and environmental level. The study expanded to 88 sites in 2016 and total recruitment reached 4,300 people, 14% away from the project’s recruitment goal.

Education, awareness and advocacy spending made up 18% of program costs and grants in F2016. Crohn's and Colitis Canada runs patient programs to improve the quality of life for those with Crohn’s disease and colitis. Over 10,000 people took part in patient programs in F2016. CCC introduced two new patient programs in 2015: The Gutsy Peer Support program, which provides support to people recently diagnosed, and Camp Got2Go, which connects children living with IBD who share common ground with their diagnosed. 100 kids participated in Camp Got2Go in F2016. CCC’s advocacy program voices policy change proposals to the Canadian government. The proposals focus on improving treatment access, washroom availability and caregiver support. In F2016, the charity contributed to the approval of two new drug treatments for IBD in Canada. CCC also reports that its GoHere washroom access campaign added over 400 Husky gas stations to its campaign during the year. CCC’s awareness program reduces the stigma surrounding IBD by educating the public on the issues IBD patients face. In F2016, the charity brought IBD into the public eye with 200 million media impressions.

Financial Review:

Crohn’s and Colitis Canada is a big-cap charity with total donations and special events fundraising of $16.5m in F2016. Administrative costs are 8% of revenues and fundraising costs are 22% of donations and special events fundraising. Per dollar donated to the charity, $0.71 goes towards its programs and grants, which falls within Ci’s reasonable range for overhead spending. CCC’s funding reserves of $12.6m include a $469k endowment fund. Excluding this endowment, the charity’s reserves can cover annual program and grant costs for 1.4 years.

Crohn’s & Colitis Canada’s seven-year Make it stop. For life. campaign has raised $44m since starting in F2014. The charity aims to raise $100m by 2020.

CCC holds an internally-restricted research reserve fund that represents estimated amounts to be honored as future research grant commitments. As of F2016, the fund holds $3.8m in future research grants to be committed within the next 12 months. This includes a $707k commitment towards the GEM Project.

This charity report is an update that is currently being reviewed by Crohn’s & Colitis Canada. Comments and edits may be forthcoming.

Updated on July 14, 2017 by Katie Khodawandi.

Financial Ratios

Fiscal year ending June
Administrative costs as % of revenues 7.8%11.6%10.4%
Fundraising costs as % of donations 21.7%31.8%25.5%
Program cost coverage (%) 140.0%105.9%99.2%

Summary Financial Statements

All figures in $000s
Donations 10,5776,1868,220
Special events 5,9667,4515,966
Investment income 189589851
Other income (132)4376
Total revenues 16,60114,26915,113
Program costs 2,8333,2432,599
Grants 6,1465,5887,145
Administrative costs 1,2781,5911,477
Fundraising costs 3,5904,3423,623
Cash flow from operations 2,754(495)269
Funding reserves 12,5699,3499,665
Note: Ci reported direct research costs in grants and the remainder of research-related costs in program costs. Ci backed out amortization on a pro-rata basis from program, administrative and fundraising costs. Ci reported foreign exchange gains/losses in other income, affecting revenues by ($132k) in F2016, $43k in F2015 and $77k in F2014. Ci reported endowment fund contributions in donations, increasing revenue by $268k in F2016. Ci adjusted for deferred revenues in donations, affecting revenues by $2.3m in F2016, ($105k) in F2015 and $384k in F2014. Ci notes that a portion of this deferred adjustment includes government funding, but is not material enough to break out from donations.

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